Not that I'm a big fan of Valentines Day, (even though I have someone who loves me I still believe that it's a holdiay to waste money) but it seems anytime a holiday comes around, Graham has to go in, or is in, the hospital. And another date night (even though we would've stayed in, we would've hung out together) is gone down the drain. But the good news...Graham is feeling much better. This time around he had RSV - an upper respritory virus that affects his lungs and breathing passages. Most likely, Jordan or I gave him this one too. Starting to wonder if Jordan and I should ever even go near him again; or at least until he is a year out. It stinks to think that you are harming someone you love just by breathing.
With RSV he had to do the same treatment he did for the Flu, with IV antibiotics included. Six hours of treatment, two hours break...repeated for 18 treatments. No one but nurses in hazmat suits and doctors allowed in the room. We hate it, we all (Jordan, Graham, and I) start really missing each other and look forward to the weekend where Jordan and I can sneak in during his 2 hours break. Which we got to do this weekend - both days, such a bonus!
What was so different this time was that his doctor took some of the blame. Turns out, Graham was REALLY immune supressed. Which might mean, if a person sneezes a block away, Graham will catch the virus. He was so supressed, white blood count was really low, that he actually had to recieve a couple of pints of blood. GEEZ! Poor guy did feel bad. He's also on this new med that does a number on his stomach. Cystic Fibrosis + Med = not fun for Graham. These past few weeks have not been fun for him, it was almost like a blast from the pretransplant past.
Right now we are waiting on his doctor to come back from vacation and review his latest cultures (done yesterday). Dr. Rosenblatt is wanting Graham to be COMPLETELY clear of all illness before he is sent home. This is a good thing, this is a good thing, this is a good thing...
Tuesday, February 15, 2011
Tuesday, February 8, 2011
January
After Graham came home from the hospital with his bout with the flu, it never really seemed he got any better. He still coughed and hacked a lot, his stomach was upset and nothing seemed to settle it, and his levels were all out of whack. He went to and from the hospital getting his blood drawn trying to figure out what was going on. One time, all levels were great - the funny part about it, he forgot to change up his meds like they ordered. As soon as he changed them, all levels were high again. To say Graham is a little frustrated about all this would be a BIG understatement. What if they never figure it out? He is still not "released" to go back to work yet and boredom and depression are hitting hard. he really wants to get out and do things, but it seems that we have to cancel plans left and right because of his health. We thought it would be better, easier...but the question of "Is he really going to be OK" looms over us constantly.
Even though Graham was sick as a dog, we did find a way to have some fun. We went to the Fort Worth Stock show and had a blast. Jordan LOVES all the fair rides, and heights DO NOT phase her. I went on the Ferris Wheel with her, I am sweating and holding on to dear life to the middle pole, while griping onto Jordan and she is standing (YES STANDING) on the seat looking out the booth yelling at me, "Mamma, let go of me." Graham and she also we up a really tall slide - and again...she loved it and wanted to do it immediately again. We saw all sorts of animals, rode horses and cows, and looked through all the vendors too. It was nice to get out as a family for the day.
We were also able to go out with friends, something we haven't done in a loooooooong time, and go bowling. Graham - macho man that he is - attempted to go out and bowl as if he hadn't missed a beat. Fell, hurt his knee, and bruised the bottom of his foot. Men. I will say though, it's easy to forget, just 5 short months ago, he couldn't breathe...but baby steps please!
Then we went over to our friends house and had dinner. So much fun! We got so excited over it, we planned the next dinner - super bowl! If you watched any of the news, DFW area got hit hard with a Ice Storm that week before the big game. We took it in stride though. I was out of school all week, Graham isn't working, Jordan stayed home - so again, we just hung out as a family. By Sunday though, Jordan was sick of us - she wanted to go back to school. Guess we can get annoying - haha. We didn't make it to that Super Dinner though. Graham woke up Sunday with a fever (his first since transplant), lung functions down, massive difficulty eating and keeping food in him, and aches as if he did have the flu.
Went in Monday to see Dr. Rosenblatt, and of course - back in the hospital. It's really weird walking in a hospital, saying Hi to everyone and singing in your head the theme song to Cheers ("Where everybody knows your name"). First rough diagnosis was Pneumonia, after tests came back - RSV. Poor guy, back on that annoying breathing treatment where he can't see anyone. I'm dreading having to tell Jordan that we can't go see him. But good news...maybe more snow tomorrow, and another day with no school!
Even though Graham was sick as a dog, we did find a way to have some fun. We went to the Fort Worth Stock show and had a blast. Jordan LOVES all the fair rides, and heights DO NOT phase her. I went on the Ferris Wheel with her, I am sweating and holding on to dear life to the middle pole, while griping onto Jordan and she is standing (YES STANDING) on the seat looking out the booth yelling at me, "Mamma, let go of me." Graham and she also we up a really tall slide - and again...she loved it and wanted to do it immediately again. We saw all sorts of animals, rode horses and cows, and looked through all the vendors too. It was nice to get out as a family for the day.
We were also able to go out with friends, something we haven't done in a loooooooong time, and go bowling. Graham - macho man that he is - attempted to go out and bowl as if he hadn't missed a beat. Fell, hurt his knee, and bruised the bottom of his foot. Men. I will say though, it's easy to forget, just 5 short months ago, he couldn't breathe...but baby steps please!
Then we went over to our friends house and had dinner. So much fun! We got so excited over it, we planned the next dinner - super bowl! If you watched any of the news, DFW area got hit hard with a Ice Storm that week before the big game. We took it in stride though. I was out of school all week, Graham isn't working, Jordan stayed home - so again, we just hung out as a family. By Sunday though, Jordan was sick of us - she wanted to go back to school. Guess we can get annoying - haha. We didn't make it to that Super Dinner though. Graham woke up Sunday with a fever (his first since transplant), lung functions down, massive difficulty eating and keeping food in him, and aches as if he did have the flu.
Went in Monday to see Dr. Rosenblatt, and of course - back in the hospital. It's really weird walking in a hospital, saying Hi to everyone and singing in your head the theme song to Cheers ("Where everybody knows your name"). First rough diagnosis was Pneumonia, after tests came back - RSV. Poor guy, back on that annoying breathing treatment where he can't see anyone. I'm dreading having to tell Jordan that we can't go see him. But good news...maybe more snow tomorrow, and another day with no school!
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