It's amazing to go through pictures and see the changes that have incurred on my family. I have a picture on my nightstand of Graham, it was taken a few years back when our good friends became engaged. Graham and a good buddy of his thought it would be a grand idea to wear patriotic swim thongs for this romantic occasion. And as soon as she said yes, they stripped down into them. Of course I took pictures and ever since, this cherished picture has been beside me at night, framed. I thought, we thought, he looked good. No oxygen, great color, happy (and he did, at this point in time look like all of those things). But now, looking at this picture, OH MY GOD - what time, and new lungs, can do. Comparing what he looks like now vs. then, he looks so sick in my picture. His color now puts his color then to shame, even though he wasn't wearing oxygen in the picture, pretty sure he got some soon afterwards. He has 20 - 25 pounds more meat on him. His happy face is still around - little bit meatier, but still all smiles and laughter from the newest joke he's pulled.
Jordan turned 3 on May 1st. Her birthday, besides always being a happy celebration for us, has also been a "will Graham be able to be there and enjoy it" thought for us. First birthday, he had just left the hospital and look and felt great. Second birthday was in between hospital stays and it took all his might to sit there with oxygen and enjoy his little girl. Third birthday, he was there - mentally and physically, making sure Jordan and he enjoyed every little second. We had it at the park, and he swung, took pictures, passed out cake, ran around, then came home and with the help of family and friends, built Jordan her very own swing set and slide. All while socializing, having a good time, and NO NAP!
I thoroughly enjoy watching Graham enjoy life. Knock on wood...Ever since his last stay in the hospital, he has been doing great. I am starting to let my held breath out and enjoy life with him. Thank you God for all the blessing you have given us.
Sunday, May 15, 2011
Monday, April 18, 2011
Living and Loving Life
We have always been a fun, outgoing couple; to say that we sat and sulked in a corner would be a HUGE lie. But we have NEVER experienced life like this. Before, we would do something, have a blast, Graham would, more likely than not, be the life of the event, then go home. Graham would need several days, if not a week or a hospital stay, to recuperate. Now...HELLO WORLD! Graham is a non-stop energizer bunny. I know I've said it before, but it's been going like this since mid-February (knock on wood) and there is no slowing down. Jordan and I have both been sick, and I mean SICK, and he not only didn't catch it, he took care of us!
By the end of Graham's 15 day hospital stay with RSV, the doctor just dismissed him. He figured, they aren't helping him, might as well send him home. And ever since, he keeps getting bigger and stronger. He's been going to the gym, strengthening all the muscles he hasn't used in awhile. He stands taller, has more muscle tone, has gained almost enough weight to FINALLY surpass me on the scale, and has the best out look on life. He's also been helping out a lot around the house and with Jordan. It's weird, I've had to retrain myself to not do somethings, or even not get offended when he does them. Yes, I would get offended. Because before, I knew it hurt him to do things, and if he had to do them, it was because it really needed to be done and he couldn't wait on me. Now, it's nothing like that.
He's been really trying to make up time with Jordan. Picking her up early from school to go swimming, having sleepovers on the couch bed together (she LOVES it, she gets to stay up late, watch Sponge Bob, and have special time with Daddy), date nights that include dinner and Braum's, and he even took her to see her first movie in the theatre - Rango. Big success, and next on her list is Rio.
He's also been trying to just relax and have fun with friends and family. Every Easter we go with my parents to an Easter Brunch at the Fort Worth Club. The food is so good, and there is a ton of it. Graham has never fully experienced this buffet. Always being too sick to eat his fill. This year, Graham is planning on not eating much on the days leading up to the brunch and chowing down. Showing the buffet who's boss. I have Pepto waiting for when we return.
We still don't know when he'll be released for work. We are guessing when he reaches a year. Dr. Rosenblatt has always been extra cautious with him, and that is fine by us. We want him around for many, MANY more years!
By the end of Graham's 15 day hospital stay with RSV, the doctor just dismissed him. He figured, they aren't helping him, might as well send him home. And ever since, he keeps getting bigger and stronger. He's been going to the gym, strengthening all the muscles he hasn't used in awhile. He stands taller, has more muscle tone, has gained almost enough weight to FINALLY surpass me on the scale, and has the best out look on life. He's also been helping out a lot around the house and with Jordan. It's weird, I've had to retrain myself to not do somethings, or even not get offended when he does them. Yes, I would get offended. Because before, I knew it hurt him to do things, and if he had to do them, it was because it really needed to be done and he couldn't wait on me. Now, it's nothing like that.
He's been really trying to make up time with Jordan. Picking her up early from school to go swimming, having sleepovers on the couch bed together (she LOVES it, she gets to stay up late, watch Sponge Bob, and have special time with Daddy), date nights that include dinner and Braum's, and he even took her to see her first movie in the theatre - Rango. Big success, and next on her list is Rio.
He's also been trying to just relax and have fun with friends and family. Every Easter we go with my parents to an Easter Brunch at the Fort Worth Club. The food is so good, and there is a ton of it. Graham has never fully experienced this buffet. Always being too sick to eat his fill. This year, Graham is planning on not eating much on the days leading up to the brunch and chowing down. Showing the buffet who's boss. I have Pepto waiting for when we return.
We still don't know when he'll be released for work. We are guessing when he reaches a year. Dr. Rosenblatt has always been extra cautious with him, and that is fine by us. We want him around for many, MANY more years!
Tuesday, February 15, 2011
Another Holiday...Another Hospital Stay
Not that I'm a big fan of Valentines Day, (even though I have someone who loves me I still believe that it's a holdiay to waste money) but it seems anytime a holiday comes around, Graham has to go in, or is in, the hospital. And another date night (even though we would've stayed in, we would've hung out together) is gone down the drain. But the good news...Graham is feeling much better. This time around he had RSV - an upper respritory virus that affects his lungs and breathing passages. Most likely, Jordan or I gave him this one too. Starting to wonder if Jordan and I should ever even go near him again; or at least until he is a year out. It stinks to think that you are harming someone you love just by breathing.
With RSV he had to do the same treatment he did for the Flu, with IV antibiotics included. Six hours of treatment, two hours break...repeated for 18 treatments. No one but nurses in hazmat suits and doctors allowed in the room. We hate it, we all (Jordan, Graham, and I) start really missing each other and look forward to the weekend where Jordan and I can sneak in during his 2 hours break. Which we got to do this weekend - both days, such a bonus!
What was so different this time was that his doctor took some of the blame. Turns out, Graham was REALLY immune supressed. Which might mean, if a person sneezes a block away, Graham will catch the virus. He was so supressed, white blood count was really low, that he actually had to recieve a couple of pints of blood. GEEZ! Poor guy did feel bad. He's also on this new med that does a number on his stomach. Cystic Fibrosis + Med = not fun for Graham. These past few weeks have not been fun for him, it was almost like a blast from the pretransplant past.
Right now we are waiting on his doctor to come back from vacation and review his latest cultures (done yesterday). Dr. Rosenblatt is wanting Graham to be COMPLETELY clear of all illness before he is sent home. This is a good thing, this is a good thing, this is a good thing...
With RSV he had to do the same treatment he did for the Flu, with IV antibiotics included. Six hours of treatment, two hours break...repeated for 18 treatments. No one but nurses in hazmat suits and doctors allowed in the room. We hate it, we all (Jordan, Graham, and I) start really missing each other and look forward to the weekend where Jordan and I can sneak in during his 2 hours break. Which we got to do this weekend - both days, such a bonus!
What was so different this time was that his doctor took some of the blame. Turns out, Graham was REALLY immune supressed. Which might mean, if a person sneezes a block away, Graham will catch the virus. He was so supressed, white blood count was really low, that he actually had to recieve a couple of pints of blood. GEEZ! Poor guy did feel bad. He's also on this new med that does a number on his stomach. Cystic Fibrosis + Med = not fun for Graham. These past few weeks have not been fun for him, it was almost like a blast from the pretransplant past.
Right now we are waiting on his doctor to come back from vacation and review his latest cultures (done yesterday). Dr. Rosenblatt is wanting Graham to be COMPLETELY clear of all illness before he is sent home. This is a good thing, this is a good thing, this is a good thing...
Tuesday, February 8, 2011
January
After Graham came home from the hospital with his bout with the flu, it never really seemed he got any better. He still coughed and hacked a lot, his stomach was upset and nothing seemed to settle it, and his levels were all out of whack. He went to and from the hospital getting his blood drawn trying to figure out what was going on. One time, all levels were great - the funny part about it, he forgot to change up his meds like they ordered. As soon as he changed them, all levels were high again. To say Graham is a little frustrated about all this would be a BIG understatement. What if they never figure it out? He is still not "released" to go back to work yet and boredom and depression are hitting hard. he really wants to get out and do things, but it seems that we have to cancel plans left and right because of his health. We thought it would be better, easier...but the question of "Is he really going to be OK" looms over us constantly.
Even though Graham was sick as a dog, we did find a way to have some fun. We went to the Fort Worth Stock show and had a blast. Jordan LOVES all the fair rides, and heights DO NOT phase her. I went on the Ferris Wheel with her, I am sweating and holding on to dear life to the middle pole, while griping onto Jordan and she is standing (YES STANDING) on the seat looking out the booth yelling at me, "Mamma, let go of me." Graham and she also we up a really tall slide - and again...she loved it and wanted to do it immediately again. We saw all sorts of animals, rode horses and cows, and looked through all the vendors too. It was nice to get out as a family for the day.
We were also able to go out with friends, something we haven't done in a loooooooong time, and go bowling. Graham - macho man that he is - attempted to go out and bowl as if he hadn't missed a beat. Fell, hurt his knee, and bruised the bottom of his foot. Men. I will say though, it's easy to forget, just 5 short months ago, he couldn't breathe...but baby steps please!
Then we went over to our friends house and had dinner. So much fun! We got so excited over it, we planned the next dinner - super bowl! If you watched any of the news, DFW area got hit hard with a Ice Storm that week before the big game. We took it in stride though. I was out of school all week, Graham isn't working, Jordan stayed home - so again, we just hung out as a family. By Sunday though, Jordan was sick of us - she wanted to go back to school. Guess we can get annoying - haha. We didn't make it to that Super Dinner though. Graham woke up Sunday with a fever (his first since transplant), lung functions down, massive difficulty eating and keeping food in him, and aches as if he did have the flu.
Went in Monday to see Dr. Rosenblatt, and of course - back in the hospital. It's really weird walking in a hospital, saying Hi to everyone and singing in your head the theme song to Cheers ("Where everybody knows your name"). First rough diagnosis was Pneumonia, after tests came back - RSV. Poor guy, back on that annoying breathing treatment where he can't see anyone. I'm dreading having to tell Jordan that we can't go see him. But good news...maybe more snow tomorrow, and another day with no school!
Even though Graham was sick as a dog, we did find a way to have some fun. We went to the Fort Worth Stock show and had a blast. Jordan LOVES all the fair rides, and heights DO NOT phase her. I went on the Ferris Wheel with her, I am sweating and holding on to dear life to the middle pole, while griping onto Jordan and she is standing (YES STANDING) on the seat looking out the booth yelling at me, "Mamma, let go of me." Graham and she also we up a really tall slide - and again...she loved it and wanted to do it immediately again. We saw all sorts of animals, rode horses and cows, and looked through all the vendors too. It was nice to get out as a family for the day.
We were also able to go out with friends, something we haven't done in a loooooooong time, and go bowling. Graham - macho man that he is - attempted to go out and bowl as if he hadn't missed a beat. Fell, hurt his knee, and bruised the bottom of his foot. Men. I will say though, it's easy to forget, just 5 short months ago, he couldn't breathe...but baby steps please!
Then we went over to our friends house and had dinner. So much fun! We got so excited over it, we planned the next dinner - super bowl! If you watched any of the news, DFW area got hit hard with a Ice Storm that week before the big game. We took it in stride though. I was out of school all week, Graham isn't working, Jordan stayed home - so again, we just hung out as a family. By Sunday though, Jordan was sick of us - she wanted to go back to school. Guess we can get annoying - haha. We didn't make it to that Super Dinner though. Graham woke up Sunday with a fever (his first since transplant), lung functions down, massive difficulty eating and keeping food in him, and aches as if he did have the flu.
Went in Monday to see Dr. Rosenblatt, and of course - back in the hospital. It's really weird walking in a hospital, saying Hi to everyone and singing in your head the theme song to Cheers ("Where everybody knows your name"). First rough diagnosis was Pneumonia, after tests came back - RSV. Poor guy, back on that annoying breathing treatment where he can't see anyone. I'm dreading having to tell Jordan that we can't go see him. But good news...maybe more snow tomorrow, and another day with no school!
Friday, January 7, 2011
They said the first year would be tough
I would like to think that since we have been through more than enough (pain, frustrations, waiting, tears, pushing, etc.), that we would be exempt from the rule "First Year is Tough;" but I guess not. As I said in my previous post, Graham (and the rest of us) have been sick since the beginning of December. Well, he got the call Monday morning to come in. Wasn't as bad this time. I don't know if it was because it was more expected this time, if it was because I was at work and not looking forward to an evening with him, or if just deep down, I knew. But luckily, I was able to keep it together...phone call came in the middle of the day and I HATE crying in front of my class.
Graham's culture he did the previous Thursday came back positive for Influenza (how the #&** did he get the Flu!!!) and the only way to treat it, and prevent an Acute Rejection, is to do an intense round of breathing treatments combined with IV antibiotics (glad they figured out that clot mess). Now, when I say intense...holy crow, I mean intense. I rarely feel bad for the guy; I mean, if I did, I'd never have time to think of anything other than him; but this breathing treatment he has to take is RIDICULOUS! First off, there are only a few machines that can actually mix this nice concoction up in the DFW area - and they were already in use. That means, when we got there Monday evening (a whole other ordeal in itself), it wasn't ready for him (neither was the room - took 3.5 hours to get ready, and they wanted him up there at 10 that morning!). So he waited, and waited, and waited. He waited all the way until Wednesday at 3:30 to get his first treatment. All he was doing there was sitting in bed, watching TV - he could've done this at home!
So here's the low down of the treatment: it's some highly toxic mixture that he has to inhale for 6 hours (yes, I said 6), break for 2 hours, then go back and inhale for another 6 hours. He does this process until he has taken 15 treatments (for a total of 5 days). And because of it's toxicity, he's in an isolation room (think exact opposite of padded walled crazy room) where no one is allowed in except doctors and nurses - and just to get in the room, they have to garb up almost as if they are in a Hazmat suit. Our question was...how is it ok for him to breathe this in??? Dr. Rosenblatt struts in wearing normal clothes, Graham's in awe thinking - why don't YOU have to Spongebob up? - and apparently all that this "highly toxic" breathing treatment will do to others is 1) It will stick to your contacts and 2) If you are pregnant, could cause birth defects. But, Jordan and I are still unable to come in and see him - not taking any chances. So during the week, we stay away. Tomorrow (Saturday), however, we are going to try and sneak in on one of those 2 hour breaks. We can't wait. Jordan and I were talking about visiting Daddy as I was putting her to bed, and as I'm typing right now, she's singing as loud as she can in bed - she's so excited! Hopefully she goes to bed soon though, don't want a cranky kid tomorrow.
Graham's culture he did the previous Thursday came back positive for Influenza (how the #&** did he get the Flu!!!) and the only way to treat it, and prevent an Acute Rejection, is to do an intense round of breathing treatments combined with IV antibiotics (glad they figured out that clot mess). Now, when I say intense...holy crow, I mean intense. I rarely feel bad for the guy; I mean, if I did, I'd never have time to think of anything other than him; but this breathing treatment he has to take is RIDICULOUS! First off, there are only a few machines that can actually mix this nice concoction up in the DFW area - and they were already in use. That means, when we got there Monday evening (a whole other ordeal in itself), it wasn't ready for him (neither was the room - took 3.5 hours to get ready, and they wanted him up there at 10 that morning!). So he waited, and waited, and waited. He waited all the way until Wednesday at 3:30 to get his first treatment. All he was doing there was sitting in bed, watching TV - he could've done this at home!
So here's the low down of the treatment: it's some highly toxic mixture that he has to inhale for 6 hours (yes, I said 6), break for 2 hours, then go back and inhale for another 6 hours. He does this process until he has taken 15 treatments (for a total of 5 days). And because of it's toxicity, he's in an isolation room (think exact opposite of padded walled crazy room) where no one is allowed in except doctors and nurses - and just to get in the room, they have to garb up almost as if they are in a Hazmat suit. Our question was...how is it ok for him to breathe this in??? Dr. Rosenblatt struts in wearing normal clothes, Graham's in awe thinking - why don't YOU have to Spongebob up? - and apparently all that this "highly toxic" breathing treatment will do to others is 1) It will stick to your contacts and 2) If you are pregnant, could cause birth defects. But, Jordan and I are still unable to come in and see him - not taking any chances. So during the week, we stay away. Tomorrow (Saturday), however, we are going to try and sneak in on one of those 2 hour breaks. We can't wait. Jordan and I were talking about visiting Daddy as I was putting her to bed, and as I'm typing right now, she's singing as loud as she can in bed - she's so excited! Hopefully she goes to bed soon though, don't want a cranky kid tomorrow.
Tuesday, January 4, 2011
November through December
Well, I told myself that I would at least try and post once a month; update on how we are living our lives - the good, the bad and the definitely ugly. We had an amazing Thanksgiving. Graham got out of the hospital, clot free and on even more meds, and was able to relax and have fun that week. It was so great to see him get down and play with all our nieces and our nephew. He and the littlest Claire, have formed a cute little bond of "chilling."
Then December came and the family was sick constantly. We were all hacking, moaning, not sleeping...but no concerns really came from Dr. Rosenblatt, so we kept on going (meaning: Graham kept running Jordan and I everywhere - he really is like some weird Energizer Bunny now). For those unfamiliar with Graham, he's been nick named "Scrooge" when Christmas time comes around. But let me just tell you...his heart, not lungs, must've grown 3 sizes this year because he not only had most of his shopping done by the 2nd week in December, he was getting excited about stuffing stockings and putting together all the "Santa" toys. On Christmas Eve, after Jordan had gone to bed, he was telling ME how to arranged the Santa toys and making sure only a bite or two was bitten out of each cookie.
It was about the third week that Graham started to get a little tired; slowing down on all our errands and shopping. We went and saw Santa in Downtown Fort Worth...Jordan was sooooo excited! She talked about him and what she was going to tell him all the way there. When we got there, we were the only ones and she was able to sit on his lap for 5 minutes! But that WAS NOT enough for our Princess, she was a little hacked that she got so few minutes with the Man of the Month and that he didn't bring Rudolf. But we only went to eat lunch afterwards, very weird for new lung Graham.
We alternate Christmas and Thanksgiving with our families, so this year we were with Graham's side of the family. And Graham's Aunt and Uncle just moved near us and we were able to stay home for the first time. It was so much fun. We were able to start our own traditions from Church, food, Santa, etc. It was very memorable - and in a good way too! If you can imagine, Graham actually helped cook Christmas breakfast; I am actually still in shock - and it was VERY good! We will definitely keep that tradition going. Sad to report though, with all the excitement and fun (especially on Jordan's end) Graham seemed to hit a brick wall Christmas Morning. He barely even moved, just felt like crap all day - even popping a few pain pills he never even use to imagine taking. That Monday he went in to the doctor for one of the longest visits ever. Leaving around 6:30 in the morning, he didn't return until 7:00 that night - I WAS FREAKING OUT! I was mad (where the hell was he and why hadn't he called), sad (what is going on with him and why hadn't he called), impatient (why hadn't he called), and slightly irritated (who else has he called besides me)....oh the thoughts that go through a woman's head.
When he finally got to see Dr. Rosenblatt he was faced with the first of the bad news. The culture they took from his lungs at the last visit tested positive for "Influenza" (I have learned that Influenza means so much more than "Flu"). But since he showed no other signs, they just sent him home and didn't worry about anything, remember how tired we was becoming???? So they needed to take another culture - this time from his nose - and if it was positive again, he'd have to stay in the hospital for minimum 5 days (*&^%(@&%()@ - aren't we done with this????). So, they got a culture from him, did a scan of his lungs, gallbladder, liver, and a few more tests - what's 5 more when you are already doing 10? Because not only was he feeling tired, his liver functions were high, blood sugar high, he had sludge in his gallbladder (???), and over all, felt like crap. Test results were to come back in 2 days, so all he had to do was wait - bad news for Energizer Bunny.
Wednesday the doctors office called, they messed up his culture - first it was lost, then they tested for the wrong thing...so he had to return to Dallas on Thursday to start this process all over. When Dr. Rosenblatt called the orders in (on Thursday) they informed him that they will not be working on New Year's Eve or Day - Rosenblatt then informed them that yes they will, even if he has to come up and do it himself (I really do love that guy!). But no call was made to Graham. We had fun together on New Year's Eve, had another great Christmas with my side of the Family (and got to watch Graham hang with his Claire and play with Grant - melts my heart every time), and went on through the weekend thinking everything was fine. HA!
Then December came and the family was sick constantly. We were all hacking, moaning, not sleeping...but no concerns really came from Dr. Rosenblatt, so we kept on going (meaning: Graham kept running Jordan and I everywhere - he really is like some weird Energizer Bunny now). For those unfamiliar with Graham, he's been nick named "Scrooge" when Christmas time comes around. But let me just tell you...his heart, not lungs, must've grown 3 sizes this year because he not only had most of his shopping done by the 2nd week in December, he was getting excited about stuffing stockings and putting together all the "Santa" toys. On Christmas Eve, after Jordan had gone to bed, he was telling ME how to arranged the Santa toys and making sure only a bite or two was bitten out of each cookie.
It was about the third week that Graham started to get a little tired; slowing down on all our errands and shopping. We went and saw Santa in Downtown Fort Worth...Jordan was sooooo excited! She talked about him and what she was going to tell him all the way there. When we got there, we were the only ones and she was able to sit on his lap for 5 minutes! But that WAS NOT enough for our Princess, she was a little hacked that she got so few minutes with the Man of the Month and that he didn't bring Rudolf. But we only went to eat lunch afterwards, very weird for new lung Graham.
We alternate Christmas and Thanksgiving with our families, so this year we were with Graham's side of the family. And Graham's Aunt and Uncle just moved near us and we were able to stay home for the first time. It was so much fun. We were able to start our own traditions from Church, food, Santa, etc. It was very memorable - and in a good way too! If you can imagine, Graham actually helped cook Christmas breakfast; I am actually still in shock - and it was VERY good! We will definitely keep that tradition going. Sad to report though, with all the excitement and fun (especially on Jordan's end) Graham seemed to hit a brick wall Christmas Morning. He barely even moved, just felt like crap all day - even popping a few pain pills he never even use to imagine taking. That Monday he went in to the doctor for one of the longest visits ever. Leaving around 6:30 in the morning, he didn't return until 7:00 that night - I WAS FREAKING OUT! I was mad (where the hell was he and why hadn't he called), sad (what is going on with him and why hadn't he called), impatient (why hadn't he called), and slightly irritated (who else has he called besides me)....oh the thoughts that go through a woman's head.
When he finally got to see Dr. Rosenblatt he was faced with the first of the bad news. The culture they took from his lungs at the last visit tested positive for "Influenza" (I have learned that Influenza means so much more than "Flu"). But since he showed no other signs, they just sent him home and didn't worry about anything, remember how tired we was becoming???? So they needed to take another culture - this time from his nose - and if it was positive again, he'd have to stay in the hospital for minimum 5 days (*&^%(@&%()@ - aren't we done with this????). So, they got a culture from him, did a scan of his lungs, gallbladder, liver, and a few more tests - what's 5 more when you are already doing 10? Because not only was he feeling tired, his liver functions were high, blood sugar high, he had sludge in his gallbladder (???), and over all, felt like crap. Test results were to come back in 2 days, so all he had to do was wait - bad news for Energizer Bunny.
Wednesday the doctors office called, they messed up his culture - first it was lost, then they tested for the wrong thing...so he had to return to Dallas on Thursday to start this process all over. When Dr. Rosenblatt called the orders in (on Thursday) they informed him that they will not be working on New Year's Eve or Day - Rosenblatt then informed them that yes they will, even if he has to come up and do it himself (I really do love that guy!). But no call was made to Graham. We had fun together on New Year's Eve, had another great Christmas with my side of the Family (and got to watch Graham hang with his Claire and play with Grant - melts my heart every time), and went on through the weekend thinking everything was fine. HA!
Wednesday, November 24, 2010
Sick x 3
Well, it happened, we are all sick with colds. And if I were one to point fingers, which I'm not, Graham had it first. I do have to say, it's really weird watching and hearing him cough again. Before, I would get some dirty looks from passer-byers when I was doing nothing for him as he looked like he was dying from his regular cough. For those of you who have never witnessed a CF coughing spell, they cough for about 30 - 60 seconds, turn purple, and are gasping for air. Yes, the first couple of years into our relationship, I would get all concerned, rub his back, (freak out in my head) but learned that there was really nothing I could do, that this was normal. Plus, he really hated those who asked if he was ok, so I learned to back off. Rubber neckers however, they would always give him either sympathetic looks or phrases and give me an evil glare as I played with either my phone, food, or whatever was around.
Now, it's a different story all together, he's NOT supposed to be coughing like that anymore! The other day, he sat on Jordan's bed and did one of his classic turn purple, cough for 30 - 60 seconds, spells. And right then, I felt like one of those onlookers, I didn't know what to do...I gave him sympathetic words and looks. I felt so bad for him. WHY CAN'T I JUST LEAVE MY GERMS AT WORK, and Jordan's at the Daycare!!! So the plan was, disinfect the entire house. Would have been great, but now I'm sick (Jordan too - that means Mommy is up at all hours of the night), and I feel like doing almost nothing. And on Vacation too! UGH!
Graham is over it, except for something called "Post Nasal Drip" and he hacks and coughs all the time. Jordan is on antibiotics for an ear infection, and I'm drowning myself in NyQuil and DayQuil to get myself through the day. Oh and Roscoe still gets ointment in his eye 3-4 times daily. God, Please keep Bocephus healthy, no more sickies!!! It's getting annoying!
Graham went to clinic on Monday and got a mixture of good and bad news. His lung functions are up to 66% and his potassium level is good. His Coumadin levels are not where they want them, so he had to be careful not to get cut, or it would've been a bleeder. And his lungs were a sounded a bit rattle-ey (hey, if the doctor can use that word, so can I). I can't tell you how nervous I was that he would not be coming home again. Luckily though, Dr. Rosenblatt just wanted to do a bronchoscope on him to see how everything looks and clear him out a little. And that's where he is today. He had to be there before the sun was even up at 6:00 am. His Mom just took him to work and since he'll be done at Noon, she'll just bring him on home too. I will post soon on the results, fingers crossed everything looks great and once Graham's lungs are nice and unclogged, he'll feel better and cough less.
Goal: To be healthy by tomorrow, Thanksgiving. Will be pumping Jordan and I with LOTS of Vitamin C. We wish a HAPPY THANKSGIVING to everyone!
Now, it's a different story all together, he's NOT supposed to be coughing like that anymore! The other day, he sat on Jordan's bed and did one of his classic turn purple, cough for 30 - 60 seconds, spells. And right then, I felt like one of those onlookers, I didn't know what to do...I gave him sympathetic words and looks. I felt so bad for him. WHY CAN'T I JUST LEAVE MY GERMS AT WORK, and Jordan's at the Daycare!!! So the plan was, disinfect the entire house. Would have been great, but now I'm sick (Jordan too - that means Mommy is up at all hours of the night), and I feel like doing almost nothing. And on Vacation too! UGH!
Graham is over it, except for something called "Post Nasal Drip" and he hacks and coughs all the time. Jordan is on antibiotics for an ear infection, and I'm drowning myself in NyQuil and DayQuil to get myself through the day. Oh and Roscoe still gets ointment in his eye 3-4 times daily. God, Please keep Bocephus healthy, no more sickies!!! It's getting annoying!
Graham went to clinic on Monday and got a mixture of good and bad news. His lung functions are up to 66% and his potassium level is good. His Coumadin levels are not where they want them, so he had to be careful not to get cut, or it would've been a bleeder. And his lungs were a sounded a bit rattle-ey (hey, if the doctor can use that word, so can I). I can't tell you how nervous I was that he would not be coming home again. Luckily though, Dr. Rosenblatt just wanted to do a bronchoscope on him to see how everything looks and clear him out a little. And that's where he is today. He had to be there before the sun was even up at 6:00 am. His Mom just took him to work and since he'll be done at Noon, she'll just bring him on home too. I will post soon on the results, fingers crossed everything looks great and once Graham's lungs are nice and unclogged, he'll feel better and cough less.
Goal: To be healthy by tomorrow, Thanksgiving. Will be pumping Jordan and I with LOTS of Vitamin C. We wish a HAPPY THANKSGIVING to everyone!
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